Chapter 12

 

            Well, I have been born again.  No, I am not referring to the fundamentalist way of being a reborn Christian, although my relationship with God is as rock solid as ever.  I have been explained by my audiologist at UMass Memorial Medical Center in Worcester, Massachusetts, USA, Dayna Hume,  as well as by Melissa Wally, the Canadian Director of Med-El, the manufacturer of the actual implant product (who came to witness my getting ‘turned on’) that I was going to regress as a bona fide infant.  Of course, my immediate response was asking if that meant I could get all the benefits of that as well, by allowing my most extreme child-like and unadulterated id could come to the clear surface, allowing me to act as impulsive, self-centered and uninhibited as I wanted to.  Sadly, that one drew a negative, but I still secretively assured myself that this pleasantly surprising declaration of infancy will grant me at least a few opportunities to act out at least a few wonderful childish behaviors that are cruelly stripped from us when we become what society refers to as 'mature, responsible' adults.  Boy, wasn't it great during those younger years when we could do absolutely whatever we wanted to do, all we had to endure was a harsh scolding or perhaps even a stiff spanking, but at least we didn't get put away somewhere such as a mental institution.

   

 The type of regressing rebirth I am referring to is that I am learning how to hear all over again, the same way an infant does.  Unlike just about every other cochlear implant recipient, I have absolutely no sight, so I suspect being unable to size up people's non-verbal cues and their internal reactions to my bench test will allow me a few more of the pleasures of my id, and I want to lay it out on the table, I had one hard-nosed id.  Most people let go of it, no that's not right, most people submerge it by the age of five or so, when the rational ego develops and social expectancies carry greater weight, but I think I was about twenty.  Ahhh, the good ol' days, I knew there was going to be something really great about this cochlear implant, especially when it was  activated, or more accurately, turned on n September 2, 2003, about three weeks after it was implanted into my skull by my very skilled neuro-otological surgeon, Dr. Daniel Lee, on August 11th.

 

A cochlear implant device is actually composed of two units-the internal unit that is surgically implanted and comprising of a quarter sized magnet that has two three inch electronic coils emanating from, each end of this cord having the actual electrodes that are embedded into the damaged cochlea and the external unit consisting of the speech processor and energy source which will be described later.  It is when this speech processor is applied and turned on that a cochlear implant (hereafter referred to as CI) recipient is truly getting ‘turned on’.

 

    Let me start by portraying what happened on Day One, at H-Hour 13 hours 15 minutes (we got a little behind because of a computer problem and the MedEl Director, Melissa,  just arriving from Canada, needed to wolf down her lunch), on Tuesday September 2.  I was accompanied by my incredibly supportive partner and soul-mate Sharron as well as my great friend Pete Rossetti, a fraternity brother and one of my roommates at UMass.  After an exchange of pleasantries, the first task at hand was to be sure the implant was working.  This involved a simple process of placing a magnet behind my ear so it would grasp the magnet imbedded in my skull, the external magnet be connected by an extension cord to the computer.  This part was easy as I had to do nothing, perhaps a warm up for my regressing infancy. 

 

After determining that the implant was indeed functioning, the next step was to attach my newest anatomical additions to my beloved skull that contains all those brilliant brain cells (id regression step #2-overly self-centered narcissm, or plainer terms, an incredibly swelled up head).  But the speech processor wasn't turned on yet, not by a long shot, there was still a lot of work to do just yet (at the mention of work, this put a slight damper on my id-I was tempted to have a full blown temper tantrum, but thought better of it or I would lose the whole ball of wax, so some thinking through was necessary here).  What we had to do was to get each of the twelve electrodes that were delicately, but snuggly, encoiled into my useless cochlea functioning at a comfortable level.  Each electrode representing a particular band of frequencies that control a sound’s pitch was activated, and the task was to allow the loudness increase to a maximum point of the most comfortable level.  So the first electrode was activated, and The Big Bang began. 

 

When I first heard the sound of the first electrode, I thought 'Sonuvagun! The implant really worked.  I am actually hearing something.'  I was in total ecstatic charge here, getting back to my regressive role by being demanding as I wanted to be, sometimes giving a thumbs up when I wanted the volume cranked up more , or by simply saying words quite familiar to me 'more, more, please give me more'.  After we finished the first two electrodes, I was getting impatient (id step #3), so I started speeding up the process by having them jump from one electrode to another without requiring a verbal alert of such. 

 

It was when I got to about the fourth electrode that I started to get slightly choked up and had to slow down the turn-on by taking a few stabilizing deep breaths.  I guess I forgot that I was granted permission for rebirth.  But it was at the fourth electrode that it dawned on me that I had never heard this sound before, never in all 56 years of my life.  It was an incredible experience, but slightly bewildering as well, actually mind-blowing.  It was like, as I explained to Peter later, what I had imagined a LSD trip to be, except Peter nor I ever dropped acid, I swear. But this fascinating mind-boggling experience kept escalating right up to the twelfth electrode, I really thought I was kind of getting high from the endogenous sensations, not just the exhilaration of hearing something like psychedelic music.  I could tell that I never ever heard about ten of those twelve frequency bands, indeed it was like familiar music of the ‘60s to my ears.  Now at this point at the completion of calibrating each electrode, Dayna played them all together, all twelve in a serial row, just like going one piano key at a time.  After Dayna completed this piano tune-up several times, it was what I imagined how Mozart sounded, not quite 'Pomp and Circumstance' yet, but we were definitely getting there.

 

            About a half hour later when all the singular electrode testing was completed, now we come down to the nitty-gritty, the big banana, the speech processor is going to be turned on all by itself without benefit of computer hook up.  This is the phase where the hankies are passed out.  So I anxiously waited as Dayna made sure the  speech processor is fitted properly around my ear. 

 

For those of you who have never seen a processor, (hereafter simply referred to as the processor), it looks pretty much like a behind-the-ear hearing aid, but somewhat bigger and more 'L' shaped than curved.  The bottom part of the 'L' is actually the processor, while the vertical longer part of the 'L' is a battery pack large enough to hold three batteries, each having about a half inch diameter.  These two units are actually separate, but are held connected by the curved ear hook that encircles the ear holding the combined battery pack and processor in place.  When the processor is placed behind the ear, the ‘L’ is actually upside down so that the processor is more parallel to the ground, while the battery pack is facing a downward vertical position at least when you are standing or sitting.  Emanating from the actual processor component is a cord about three inches in length.  On the other end of this electronic cord is a round magnet, roughly about the size of a quarter.  This magnet is magnetically held in place by the, you guessed it, the magnet that is permanently welded inside my scalp through the brilliance of Dr. Daniel Lee’s surgical skills.

 

            Assured that the processor indeed is where it is supposed to be, Dayna then follows these reassuring hand movements of a skilled professional doing her job by abandoning me.  I wait.  I don't have a clue of what to expect, but suddenly I hear these weirdest sounding sounds.  The best analogy I can provide is the visual and auditory image that came bouncing smack into my mind’s eye when I heard these unheard of sounds. These sounds sounded similar to when, like a real idiot, I threw Berky, an old Sig Ep fraternity brother into the swimming pool at a popular off-campus housing complex located in Amherst, Massachusetts, Puffton Village, before I remembered to take my hearing aid off.  Although Berky was a fraternity brother of mine, I think he became my enemy forever, I haven't heard a word from him since.  I guess he was really ticked off because he had his best penny loafers that matched his Maroon Keys suit, but he did laugh uproariously when he realized I still had my hearing aid on.  I say I guess because I really couldn't hear him thanks to the dying hearing aid that sounded something like a vacuum cleaner that was trying to operate in the swimming pool, and I am talking about a real vacuum cleaner, not a swimming pool cleaner.  But I could Berky really was laughing like there was no tomorrow because (remember, I had  a little sight back then) his face was beet red and his mouth was wide open even revealing his silver fillings.  I became concerned however when it looked like he was making these ghastly contorted movements, sort of what I imagined a grand mal to look like.  I was told later that ol' Berky was laughing so hard that he swallowed some water and began to choke, thus, his rage at me was back at square one. 

 

Anyway, this was my first association with these unnerving sounds fed from the processor into the auditory cortex of my brain, but I got a hold of myself, again putting my id in check for the second time in about a half hour.  I took my leap into faith and listened.  And I listened.  Still nothing was making too much sense, in fact, nothing was making any sense.  Somehow I reasoned to myself, keeping the id in check still, that I had to put these sounds together, after all, amy of these sounds were sounds I never heard before.  It was if, I thought, a giant auditory puzzle had been dumped out of the box on to the table and I had to find a way to put this puzzle together, bit by bit.  In essence, my brains were becoming scrambled and I had to unscramble them by making sense of these sounds. 

 

All of a sudden, what seemed like a minute after Dayna abandoned me (I think it was about a minute although my sense of time had slipped a bit; I may as well have been in orbit), I think I hear a recognizable sound.  Now I listen with even more patience, the patience of Job, just taking this sound that is so agonizingly close to a word in.  Is this sound I am hearing what I think it is?  I listen with all the concentration I can muster, listening, listening . . .well, I’ll be,  it is what I think it is.  It is my name, someone is saying “Brian”, and my name couldn't have sounded sweeter even when my mother was preparing to nurse me as an infant. 

 

After making sure it is Brian that I hear, I start to ask if someone is calling me, except that when I utter the first syllable I nearly jump out of my skin.  I heard my voice for the first time through the processor and, man, did it sound different.  The first thing I reflexively think of when I hear my name is a activated tape recorder that is playing in high speed while submerged in water, if such a thing could happen, except the letters that form my name   can be understood.  So I listen some more.  Now I am distinguishing some more words.  “Brian, can you hear me”.  I hear this sentence repeated at least three times.  It reminds me of the line from the rock opera Tommy by The Who.  “Tommy, can you hear me, Tommy can you see me . . .” But this is no rock opera, I am sitting in a professional's office, not at London’s Symphony Hall.  I tell myself this anyway. 

 

Finally, I say, “yes, I think I hear you . . .” but again jump to the sound of my own voice.  Then I say something to the effect (some of this I can't remember too well, as my brains are really scrambling) “why does everything sound like a bunch of chipmunks in heat?” then I hear a cacophony of sounds that resemble a canary that got caught in a fan, but I decipher it to be laughter.  So I laugh, and again I jump.  Now I make out some words that Dana, at least I think it is Dana, is saying. “You are hearing all new sounds you never heard before.”  At least I got about a third of that sentence, but I assume that is what she must have said.  I feel like responding to this statement by uttering “no kidding what a brilliant assessment” under my breath, but I think better of it because I don't have the foggiest notion what uttering under my breath means anymore.  My own breathing sounds as loud as the wind blowing into my helmet encased hearing aid while racing on a steep perilous course in the downhill when I was a member of the US Disabled Ski team. 

 

I learned to calibrate the meaning of 'uttering under my breath' about forty years ago when I uttered under my breath for my math teacher at Bridgton Academy (the school I deliberately underscored my SATs for so I could have a hockey comeback attempt) to, using my exact words, “go take a hike, you nerd”.  Not only did my math teacher hear it clear as a bell, so did the entire classroom.  Then my headmaster heard about it after the fact, and I nearly got bounced from a school that I deliberately down scored my SATs to gain admittance, a school at the time I was at the top of the class academically.  Yep, I really learned a real lesson, I would say I lowered my not so fancy utterings about thirty decibels, but I still really had no way of knowing.

 

            Then I make out “Brian, can you hear me” again, and I wonder if this statement isn't getting a bit overdone.  Somehow however, I realized that I forgot that Sharron, Peter and Melissa are also in the room.  Without jumping this time, I ask who is speaking.  I hear the name “Sharron”.  She says her name as if her nose is pinched together by a clothespin and someone has magically tightened up her larynx fourfold.  I say “Sharron?”  As my mind is so clouded, I try to think of something intelligent to say to my soul-mate who is now in tears, so I say, “Have we met before?” to which I hear the sound of the canary hitting the fan again.  Some refer to this ill fated canary as shredded tweet, but I don’t want to offend any bird lovers or attract the wrath of the SPCA, I am only attempting to make an analogy, although I never heard a canary meet its doom with a rotary fan. 

 

Then I hear the sentence “Brian, can you hear me?” this time I hear a little emphasis on the word 'me', so I deduce, using my Irish logic, that it is someone different once again.  I ask who's speaking now , and when I hear the word “Pete” which I really can make out well despite it being a monosyllabic word, I break out in near convulsive laughter. I couldn't have jumped even if I wanted to because the hilarity hit me before the weird sound had a chance to grab me.  Besides, I am starting to get used to this falsetto sounding world.   “Pete”, I reply, my voice still sounding like a Martian, “did you have a sex-transplant?”.  Again, the canary hit the fan. 

 

Now, I get serious, something hard to do at this stage of the game, and really concentrate on my listening skills.  After all, I am a professional psychotherapist by trade.  I am hearing more words now, still not putting the sentences together too well, thus asking for a lot of repetitions, but I am definitely making out more words.  Finally, I make out Dayna saying that I am hearing my own voice and that is tripping me up a bit.  Tripping me a bit?   What a gross understatement.  The first time I tried to say my very first words via implant, actually the first I attempted to get the letter 's' sound out, I looked around to see who else was in the room, except that I can't see and I had forgotten that.  Remember, my brains are still scrambled, no acid, no drugs, but I swore I was going to have a quick cocktail when this was over and I made good with this internal pledge. 

 

The letter ’s’ perhaps along with the letter 'x' are perhaps the highest frequencies in the alphabet and I never really could hear them before, along with a bunch of other letters.  The letter's' was really tripping me, however, for one thing it is spoken more often, but more so because the letter is spoken by lightly placing the tip of the tongue behind the upper front teeth where the roof of the mouth begins.  Every time I would place that bloody tongue even close to the connecting point of the gum to make the letter 's', I would hear a distinctive whistle,  a canary that did not hit a fan.  Eventually, I am able to make the adjustment and utter out a few words, constantly asking if my speech still sounds the same, each time hearing a 'yes', the 'yes' sounding as if intoned by a young toddler answering to her Mommy. 

 

I make out Dayna explaining to me that everything sounds so different because I am hearing sounds that I have never heard before.  You see, the normal frequency span of human speech is approximately from 250 Hertz, or Hz to about 6000 Hz, most of the sounds actually being between 500 Hz to about 4000 Hz.  From birth, I could never heard sounds from about 2500 Hz, and I only heard those sounds when spoken at about 80 decibels, or about four times the volume of normal speech.  From the time I was around thirty, I never heard a sound that was over 1000 Hz, again only hearing anything at 750 Hz when cranked up to about 85 decibels.  What complicated matters even more was that I had excellent speech for someone with such a profound loss, some of my audiologists stating it was unprecedented; therefore, many thought I had pretty good hearing despite the presence of the hearing aid (which gets covered up when my hair gets longer), so when I am unable to responding conversation to other people, especially in the nightmarish environment with background noise, I am taken by strangers to be another Forest Gump.  When the environment is perfectly quiet and the speakers are in close proximity to me (a bodily arrangement I became quite adept at encouraging, especially with females), I am often believed to be near normal in my auditory connection to the world, but make no mistake about it, I am just about totally deaf without my hearing aid, while hearing only about a quarter of sounds in the lower frequencies (250 Hz to 750 Hz) with it. 

 

But now I am hearing all of the sounds in the human frequency band, but I am not hearing them like you as a non-hearing impaired person, as you hear these sounds through the gift of God, through your cochlea, a tiny organ that is lined with hair like filaments that vary in length from perhaps about a half millimeter to a two millimeters, while these sounds are coming into my brain via twelve electrodes.  But the magnificence of technology has enabled these amazing electrodes to come quite close to resembling human speech.  It just sounds unlike human speech to me because I have never heard speech the way it is supposed to be heard.  Instead, I have incorporated those misrepresented sounds into my own auditory world, literally turning these sounds upside down to make them fit into my auditory orientation to the outer world, and this has always been my hearing frame of reference. 

 

            Eventually, after deciphering more words and sentences, mostly incomplete sentences,  Dayna takes off the processor and I plug back into the world my ordinary way with my hearing aid.  She explains to me that things went very well, much better than she expected and promises me that the quality and the comprehensiveness of the sounds are going to get better and better and better.  I appreciated the reassurance, but I didn’t really need, I had a pretty good idea that this would be the case.  She bids me well for the evening, tells me that even the next day I will notice an improvement and assures me that I will sleep like a baby the this evening.  She is absolutely correct on both counts and I believe that her prediction of the sleeping baby has some metaphorical meaning.

 

            At this point I was pretty wiped out, but I left the office with the processor on.  Peter, the proverbial hard driving engineer and anatomist, drilled me with questions, asking what I can hear.  He also asked me, when we were finally and very graciously seated for cocktails, if I could ear specific things like the sound of ice tinkling against the crystal.  I assured him that I could, but neglected to tell him, due to pleasure-driven motivation and selective hearing, that I always could hear that tinkling ice. 

 

Speaking of tinkling, and this part is not to be read by the squeamish, as it could be interpreted as rather primitive, but it’s The God’s truth and was very meaningful to me, so I hope you hear me out.  The only other noteworthy event was that after my cocktail, I had to, well . . ., I had to pull off a number one in the bathroom, or as we used to say in the Hubbard household, I had to tinkle.  So I stumbled, from blindness aggravated by fatigue not the cocktail, into the bathroom and proceeded to do my business.  Then it hit me like a thunderbolt, the awareness snapped me smack out of my cocktail fed weariness.  I couldn’t believe it, I just could not believe it, it was too far out.  I could actually hear my own internal fluids hitting the water in the toilet, hearing the sounds of my internal renal cleared fluids tinkling the water like the tinkling of a hundred spoons tapping against the crystal at a wedding.  I almost leaped for joy except I was still passing my water.  I realized that no more would I have to worry about wondering if I actually aimed right, or have to deal with the agonizing frustration of feeling liquid hitting your shoes and socks, or even worse, your pants.  This was especially a pitiful scenario when dressed in formal attire before something important such as giving a talk somewhere or attending a funeral.  This even became more of a problem after prostate cancer, when the atrophying of the ureter made it very difficult to control.  When I got bombed with that unforgivable problem and I didn’t have time to change, I would make up some dumb excuse such as getting splashed by a passing car driving through a puddle even though it hadn’t rained for three weeks and the streets were dry as a bone.  Tears of laughter and joy welled up again, as I realized this pathetic problem was indeed a thing of the blasted past.

 

Sharron and I return the next day right on time at 10 AM.  Again, we exchange pleasantries and march right into her office.   Peter and Melissa are not here today.  The first item of business is a somewhat embarrassing admission that the magnet is not holding to well to my skull, for I fear not only could this mean that I am pretty thick headed, but I may need further surgery to implant a  magnet the size of a silver dollar rather than a quarter.  Dayna reassures me that this is pretty typical and simply places another magnet that is about half the diameter of a dime onto the original magnet. 

 

Then we get right down to business, going through the same procedure that we went through the previous day.  This time we wing right through it, checking each electrode one at a time.  This time I want the volume cranked up a bit, even slightly bordering on mild discomfort.  Next she gives me a sort of a hearing test, to let her know when I first notice the sounds that increase in frequency.  It is amazing to me that I can actually hear those high frequency sounds, even with little decibel amplification, or at least, that’s what I think the case was.  Then she makes some adjustments with the processor through her computer based on the test results.  She hands it back to me and I place it on by myself.  She begins talking and immediately I notice a difference.  Although not all the time, I am getting complete sentences, and indeed it really hits me that a miracle has occurred.  I listen to the strange world that is now less strange, becoming more familiar with the heated chipmunks as Dayna once again explains that things will get better and better.  We do so well on this day, we don’t even have to use the entire two hours allotted, so we engage in some dialogue.  I share with Dayna that once the implant has taken hold (notice that I didn’t say ‘if the implant takes hold’), I really would like to fulfill my dream of getting my PhD, specializing in geriatrics.  After all, I am going to have to take care of some of my friends pretty soon as it will be payback time.

 

            After arriving home, Sharron was drop dead tired and headed for a nap, so I went to sit outside on the patio.  I just sat and listened with my new ear.  Even though intellectually prepared for this, I still can’t believe the spectrum of sounds I am hearing, even the creaking of the swing chair I was sitting on sounded so loud.  I listened to everything, I took it all in, drank it all up, occasionally attempted to distinguish what I hear, the other times I just took it all in.  Despite some of those corny hearing aid ads I have heard, about being able to hear the birds, I still got a jolt of emotion when I really did hear some birds, even two that seem to be talking to one another.  I was able to distinguish the sound of cars passing in the front of the house, something I was not so sure I was pleased about.  But I couldn’t believe I was hearing all of this, it just blew me away.  I think some of the mind blowing is attributed to the sublime fact that I always conditioned myself to accept my limits, never allowing my hopes to rise up, that something could actually be done to help me.  I learned that lesson back as a college sophomore when a pompous Fifth Avenue eye doctor promised he could help me with massive doses of Vitamin D. 

 

Sitting in the swinging patio chair, I held back tears, not so much because I was reticent about such things, but I didn’t want to run out of them.  Starting from the day I went under in preparation for Dr. Lee’s knife, lamenting to the nurses that my tears were of joy, not the anesthesia, to hearing my first sound, then to hearing my name to hearing those corny birds, I figured I couldn’t keep letting  the watershed overflow, the lachrymal glands must have a limit to the manufacturing of tears.  After all, I was granted my infancy back, therefore I could now be very infantile.  Thus, I am going to anticipate much, much more, including my beloved Snowshoe Siamese Minky’s cries, a sound I haven’t heard yet for the simple reason she isn’t crying these days because she is so happy we are back.

 

            The next day, September 4th, there was definite improvement in comprehension and, by golly Miss Molly,   some of those sounds really kicked up quite a stir in me.  Sharron did laundry, the machine being down in the basement, and I couldn’t believe how loud it sounded.  I had to ask Sharron what it was.  Before today, I never heard one iota of that machine.  So, in a five page nutshell, that’s how the Big Bang went.  Still a long way to go, but absolutely no doubt that I will get there, thanks, in a huge part, from the great support I am getting from all of my friends and  loved ones.  They all, hometown pals as well as college buddies, have supported me for over forty-five years, so my indebtedness to them will never allow me to cease the reciprocity.  The new gift of hearing,  there is nothing like it in the world.  The miracle of hearing, it just makes the miracle of life that much more powerful.

 

 

Copyright by:

 

Brian J. Hubbard, LICSW 
brian@brianjhubbard.com
www.brianjhubbard.com